Officials decided to increase support for families with children with disabilities… four rubles and kopecks
Many critics called the draft law “On amendments to article 1 of the Federal law “About the specification of financial expenses in the month on one citizen receiving state social assistance in the form of social services, provision of medications, medical products, and also specialized products of medical nutrition for children with disabilities for 2016”.
It would seem nothing special, the document does not contain. Similar bills are prepared by the Russian Ministry of health in coordination with the Ministry of Finance every year. The law requires to review the rules in connection with inflation and the current situations in the economy.
But this time the increase was so small (4 rubles 20 kopecks), which, as noted by opponents, reminiscent of a mockery of sick children.
Survive
Penny replenishment of the budget of families with children with disabilities does not cover additional costs associated with inflation. And says it’s rather about the concern of the state about people with disabilities, and the desire of officials to report about what level of support disabled people is growing even in the difficult crisis time. Although this improvement is only as a conditional call. The state could find for all children with disabilities in the month just over 2.5 million rubles, which is significantly less than the annual salary of the Federal parliamentarian.
Officials are not ashamed to include in the report a ridiculous amount, though, as recently noted by the Chairman of the Duma Committee on budget and taxes Andrey Makarov, the country’s money is like dirt and they just do not know how effectively to dispose of.
The consequences of this “concern” about children in need of special support from the government, says the continued growth in the number of young people with disabilities. As you know, to get the status of the disabled in our country is much more difficult than abroad. But even in our excessively strict criteria, over the past five years, the number of disabled children increased by 10 percent.
The proposed increase in regulations from the Ministry of health of Russia called a mockery of common sense. Even in comparison with the increase of pensions it looks ridiculous. People can not understand: why children do not have enough money at the time, as recently raised the salaries are not the poorest members, and even ranked as the beneficiaries who receive free medicines.
“In the regions of his life, – says the Deputy of the city Assembly of the city of Kamyshin Volgograd region, the mother of a disabled child Belugina of Faith, and in proof cites his personal example. – As a Deputy and the mother of a disabled child I do not receive any money for their parliamentary activities, but on the pens, the paper work has to spend their money. Had to refuse a social package, to get the money on hands. The main reason is that we need drugs in the proposed social package is still there.
Besides, the regional Ministry of health often lead people astray, claiming that refused from social package and receiving this benefit money citizens will be deprived of the rights due to them free medicines.
The system of provision of medicines works very badly. Doctors apply according to the needs of children with disabilities, and the answer comes this one: in the pharmacy, these drugs do not. All this is because parmodel regional Ministry of health does not order these drugs. As for the size of social benefits, it is often not even enough for one cure. Let me explain: in addition to anticonvulsant, which my child do not help much, we buy more and the drug “Teraligen”. It is not listed in any lists. In this preparation we have two years, only because it helps to cope with spasms. Now, one pack of 50 tablets costs about 400 rubles. In a month they need two. So it turns out that this benefits us is not enough even for one drug, and there are children, the preparations for which can cost a thousand rubles, and three, and even five thousand.”
Happy case
True, there is a list of the medications that disabled children can get totally free, without regard to financial support in 758 rubles, and taking into account allowances – 762,2 of the ruble. However, these drugs are usually the cheapest and not always effective.
Expensive drugs for children with disabilities no. The solution to this problem, the state shifts to the shoulders of poor families, and so on life is not lacking. To help such families can only be the case.
The girl Sophia Babich from Togliatti, suffering from cerebral palsy (CP), drew attention only after she phoned on a direct line with the President in April last year. She spoke about the desire to learn how to walk, and for that it needs the simulator cost about 20 thousand rubles. In today’s tutorial, we will notice, she would have had to collect on the simulator over two years. A few days later the girl brought two of trainer: one from the regional authorities, the other as a gift from the head of Chechnya Ramzan Kadyrov. After a few days one large insurance firm offered to the child rehabilitation in a German clinic. This story with a happy ending there is only one problem: all minors with disabilities (and their more than 600 thousand) not via a straight line to request the help of the head of state, that they drew the attention of officials and benefactors.
The country ratified the UN Convention on the rights of persons with disabilities, should be ashamed to restrict aid to these people tiny benefits.
Officials suggest to wait for better times and not think much about the odds of those whom the government throws in the lurch.
